What a day!! Tommy has Henoch-Schonlein Purpura, or HSP. It started on Friday with just a little hives/rash on the back of his neck and the side of his face. We ran him into the pediatrician, she told us what to do to treat it. Gave him some benadryl and he was doing ok. Throughout the weekend he did ok, still had hives that would come and go but nothing to concerning. Sunday night I noticed that the hives were worse than they had been, they were really swollen and were hard when you would touch them and didn't turn back white when you push on them and they were really hot to touch. So, off to St. Rose ER we went. That is where they diagnosed him with HSP, said benadryl for itching, and tylenol for pain were all that we could do to help him. Monday, after Tommy woke up from his nap, this is what he looked like!! His poor little kissable lip was so swollen!! And his face was pretty broken out. He wasn't panicked or acting unusual. I ended up calling 911, not knowing what to do for him, but knowing that this wasn't ok or normal.
The fire department got here before the ambulance and gave him some benadryl and did his vitals. Tommy did not like the ambulance ride to Sunrise. But the nice thing was no lines to get a room in the ER!! We got right in. I felt horrible as I was telling the nurse and doctor Tommy's medical history, his last few months have been so rough!! They gave him some steroids and then his face looked like this!
They watched him for a little bit, and other than the hives/rash he started with and the swelling of his lip he was fine! They released us with instructions for him to take benadryl every 6 hours regardless of how he is doing, a prescription for steroids for the next week for him and an epi pen just in case!! My poor baby!! When he went to bed at 9 tonight, his lip was back to being its cute little kissable lip!